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<Bundle xmlns="http://hl7.org/fhir"><id value="23bdf7fb-f625-4b6f-919d-1f481c2eec53"/><meta><lastUpdated value="2024-04-27T02:14:09.415+00:00"/></meta><type value="searchset"/><total value="15"/><link><relation value="self"/><url value="https://data.developer.nhs.uk/ccri-fhir/STU3/QuestionnaireResponse?_count=100&_format=html%2Fxml&_include=*&patient=1184&questionnaire=https%3A%2F%2Ffhir.nhs.uk%2FSTU3%2FQuestionnaire%2FCareConnect-EOLC-1"/></link><entry><fullUrl value="https://data.developer.nhs.uk/ccri-fhir/STU3/QuestionnaireResponse/6"/><resource><QuestionnaireResponse xmlns="http://hl7.org/fhir"><id value="6"/><meta><lastUpdated value="2019-03-21T14:14:37.513+00:00"/></meta><identifier><system value="https://fhir.midyorks.nhs.uk/QuestionnaireResponse/Identifier"/><value value="yas0"/></identifier><questionnaire><reference value="https://fhir.nhs.uk/STU3/Questionnaire/CareConnect-EOLC-1"/></questionnaire><status value="completed"/><subject><reference value="Patient/1184"/><display value="MS Emilie KEWN"/></subject><authored value="2018-07-31T23:00:00+00:00"/><author><reference value="Practitioner/202214"/><display value="Dr K Rodger"/></author><item><linkId value="ATP"/><text value="Advanced Treatment Preferences"/><item><linkId value="ATP001.1"/><text value="Clinical Problems and Advised Interventions"/><item><linkId value="ATP001.1.1"/><text value="ATP Problems"/><answer><valueReference><reference value="Condition/101"/><display value="Dyspnea"/></valueReference></answer></item><item><linkId value="ATP001.1.2"/><text value="Treatment Level"/><answer><valueReference><reference value="CarePlan/1"/></valueReference></answer></item></item><item><linkId value="ATP001.2"/><text value="Anticipatory medicines/just in case box issued"/><answer><valueReference><reference value="Procedure/49"/></valueReference></answer></item><item><linkId value="ATP001.3"/><text value="Advance Decision to Refuse Treatment"/><answer><valueReference><reference value="Flag/3"/></valueReference></answer></item><item><linkId value="ATP001.4"/><text value="ReSPECT Care"/><item><linkId value="ATP001.4.1"/><text value="ReSPECT Patient Care Priority - Scale"/><answer><valueInteger value="50"/></answer></item><item><linkId value="ATP001.4.2"/><text value="ReSPECT Patient Care Priority - Textual"/><answer><valueString value="Patient is to be treated and made as comfortable as possible."/></answer></item></item><item><linkId value="ATP001.5"/><text value="Date of change in list of advance treatment preferences"/><answer><valueDateTime value="2018-08-01T00:00:00+00:00"/></answer></item><item><linkId value="ATP001.6"/><text value="Professional recording these changes to this list of Problems and Interventions"/><answer><valueReference><reference value="Practitioner/202214"/><display value="Dr K Rodger"/></valueReference></answer></item></item><item><linkId value="CON"/><text value="Consent"/><answer><valueReference><reference value="Consent/1"/></valueReference></answer></item><item><linkId value="CPR"/><text value="CPR Status"/><item><linkId value="CPR001.1"/><text value="CPR Status"/><answer><valueReference><reference value="Flag/1"/></valueReference></answer></item><item><linkId value="CPR001.2"/><text value="Reason for CPR status"/><answer><valueString value="The outcome of the CPR would not be of overall benefit to the patient"/></answer></item><item><linkId value="CPR001.3"/><text value="CPR Status Mental Capacity"/><answer><valueString value="This person has the mental capacity to participate in making these recommendations. They have been fully involved in the decision making process."/></answer></item><item><linkId value="CPR001.6"/><item><linkId value="CPR001.6.1"/><text value="Coded entry for people involved in the discussion"/><answer><valueCoding><system value="http://snomed.info/sct"/><code value="713656002"/><display value="Discussion about cardiopulmonary resuscitation with family member (situation)"/></valueCoding></answer></item><item><linkId value="CPR001.6.2"/><text value="Text entry for people involved in the discussion"/><answer><valueString value="Supporting information not provided."/></answer></item></item><item><linkId value="CPR001.7"/><item><linkId value="CPR001.7.1"/><text value="Coded entry for people aware of the decision"/><answer><valueCoding><system value="http://snomed.info/sct"/><code value="975291000000108"/><display value="Family member informed of cardiopulmonary resuscitation clinical decision (situation)"/></valueCoding></answer></item><item><linkId value="CPR001.7.2"/><text value="Textual version of that person or group of people"/><answer><valueString value="Uncle Bob has been made aware of the decision"/></answer></item></item><item><linkId value="CPR001.8"/><text value="Professionals Involved In Decision"/><answer><valueReference><reference value="Practitioner/202214"/><display value="Dr K Rodger"/></valueReference></answer></item><item><linkId value="CPR001.10"/><text value="Professional Endorsing Status"/><answer><valueReference><reference value="Practitioner/202214"/><display value="Dr K Rodger"/></valueReference></answer></item></item><item><linkId value="DIS"/><text value="Disabilities"/><item><linkId value="DIS001.1"/><text value="Patient Disabilities"/><answer><valueReference><reference value="Condition/102"/><display value="Asthma"/></valueReference></answer></item><item><linkId value="DIS001.2"/><text value="Professional recording these changes to Disabilities"/><answer><valueReference><reference value="Practitioner/202214"/><display value="Dr K Rodger"/></valueReference></answer></item></item><item><linkId value="DOC"/><text value="Other Documents"/><item><linkId value="DOC001.1"/><text value="Document Name"/><answer><valueString value="Lasting power of attorney offical document"/></answer></item><item><linkId value="DOC001.2"/><text value="Document Location"/><answer><valueString value="Top left drawer in cabinet located in dining room. Documents are inside blue folder."/></answer></item><item><linkId value="DOC001.3"/><text value="Document Source"/><answer><valueString value="Document drawn up at A B Solictors, Newcastle"/></answer></item></item><item><linkId value="EOL"/><text value="EOL Register"/><answer><valueReference><reference value="Flag/2"/></valueReference></answer></item><item><linkId value="FUN"/><text value="Functional Status"/><answer><valueReference><reference value="Observation/10746"/><display value="Karnofsky Performance Status score (observable entity)"/></valueReference></answer></item><item><linkId value="LPA"/><text value="Lasting Power of Attorney"/><item><linkId value="LPA001.1"/><text value="Lasting Power of Attorney For Health and Welfare"/><answer><valueReference><reference value="Flag/4"/></valueReference></answer></item><item><linkId value="LPA001.2"/><text value="Persons Appointed"/><answer><valueReference><reference value="RelatedPerson/78"/></valueReference></answer></item></item><item><linkId value="PREF"/><text value="Preferences"/><item><linkId value="PRE001.1"/><text value="Preferred Place Of Death"/><item><linkId value="PRE001.1.3"/><text value="Preferred Place Of Death (Text)"/><answer><valueString value="At home with family"/></answer></item></item><item><linkId value="PRE001.2"/><text value="Preferences and Wishes"/><answer><valueString value="To be made comfortable and looking out onto garden"/></answer></item><item><linkId value="PRE001.3"/><text value="Domestic Access and Information"/><answer><valueString value="A key safe is provided to allow access to the property. Carer and related contact has code."/></answer></item><item><linkId value="PRE001.4"/><text value="Preferences Date Recorded"/><answer><valueDateTime value="2019-02-11T00:00:00+00:00"/></answer></item><item><linkId value="PRE001.5"/><text value="Preferences Author"/><answer><valueReference><reference value="Practitioner/202214"/><display value="Dr K Rodger"/></valueReference></answer></item></item><item><linkId value="PRO"/><text value="Prognosis"/><answer><valueReference><reference value="ClinicalImpression/1"/></valueReference></answer></item></QuestionnaireResponse></resource></entry><entry><fullUrl value="https://data.developer.nhs.uk/ccri-fhir/STU3/Patient/1184"/><resource><Patient xmlns="http://hl7.org/fhir"><id value="1184"/><meta><lastUpdated value="2024-04-25T22:34:14.611+00:00"/><profile value="https://fhir.hl7.org.uk/STU3/StructureDefinition/CareConnect-Patient-1"/></meta><identifier><extension url="https://fhir.hl7.org.uk/STU3/StructureDefinition/Extension-CareConnect-NHSNumberVerificationStatus-1"><valueCodeableConcept><coding><system value="https://fhir.hl7.org.uk/STU3/CodeSystem/CareConnect-NHSNumberVerificationStatus-1"/><code value="01"/><display value="Number present and verified"/></coding></valueCodeableConcept></extension><use value="official"/><system value="https://fhir.nhs.uk/Id/nhs-number"/><value value="9658220142"/></identifier><active value="true"/><name><use value="official"/><family value="KEWN"/><given value="Emilie"/><prefix value="MS"/></name><gender value="female"/><birthDate value="1999-10-03"/><address><use value="home"/><type value="physical"/></address><maritalStatus><coding><system value="http://hl7.org/fhir/v3/MaritalStatus"/><code value="S"/><display value="Never Married"/></coding></maritalStatus><generalPractitioner><reference value="Practitioner/203529"/><display value="Miss Nichole Gilbert"/></generalPractitioner><managingOrganization><reference value="Organization/200268"/><display value="HSCIC test Practice"/></managingOrganization></Patient></resource></entry><entry><fullUrl value="https://data.developer.nhs.uk/ccri-fhir/STU3/Practitioner/202214"/><resource><Practitioner xmlns="http://hl7.org/fhir"><id value="202214"/><meta><lastUpdated value="2018-09-17T15:48:15.084+00:00"/><profile value="https://fhir.hl7.org.uk/STU3/StructureDefinition/CareConnect-Practitioner-1"/></meta><identifier><system value="https://fhir.nhs.uk/Id/sds-user-id"/><value value="C4012900"/></identifier><active value="true"/><name><family value="Rodger"/><given value="K"/><prefix value="Dr"/></name></Practitioner></resource></entry><entry><fullUrl value="https://data.developer.nhs.uk/ccri-fhir/STU3/Condition/101"/><resource><Condition xmlns="http://hl7.org/fhir"><id value="101"/><meta><lastUpdated value="2019-03-21T14:14:32.292+00:00"/><profile value="https://fhir.hl7.org.uk/STU3/StructureDefinition/CareConnect-Condition-1"/></meta><identifier><system value="https://fhir.midyorks.nhs.uk/Condition/Identifier"/><value value="crm1"/></identifier><clinicalStatus value="active"/><code><coding><system value="http://snomed.info/sct"/><code value="267036007"/><display value="Dyspnea"/></coding><text value="Breathlessness"/></code><subject><reference value="Patient/1184"/><display value="MS Emilie KEWN"/></subject><onsetDateTime value="2018-07-31T23:00:00+00:00"/><asserter><reference value="Practitioner/202214"/><display value="Dr K Rodger"/></asserter></Condition></resource></entry><entry><fullUrl value="https://data.developer.nhs.uk/ccri-fhir/STU3/CarePlan/1"/><resource><CarePlan xmlns="http://hl7.org/fhir"><id value="1"/><meta><lastUpdated value="2018-11-02T17:10:53.019+00:00"/></meta><identifier><system value="https://fhir.midyorks.nhs.uk/CarePlan/Identifier"/><value value="blm1"/></identifier><status value="active"/><intent value="plan"/><category><coding><system value="http://snomed.info/sct"/><code value="736373009"/><display value="End Of Life Care Plan"/></coding><text value="End Of Life Care Plan"/></category><subject><reference value="Patient/1184"/><display value="MS Emilie KEWN"/></subject><period><start value="2018-07-31T23:00:00+00:00"/></period><author><reference value="Practitioner/202214"/><display value="Dr K Rodger"/></author><activity><detail><code><coding><system value="http://snomed.info/sct"/><code value="702779007"/><display value="Emergency health care plan agreed"/></coding><text value="Emergency health care plan agreed"/></code><status value="not-started"/><description value="[18 Sept 2018] This plan is known to the Harrogate Palliative Care Team. If advice needed Monday-Friday 0830-1700 contact the team on 01423 553464. Outside these hours contact Saint Michael's Hospice (Harrogate) on 01423 872 658. [21 Nov 2018] At risk of hypercalcaemia (Corr Ca+ 3.01 on 20th Nov) - symptoms were increased confusion and drowsiness."/></detail></activity><activity><detail><code><coding><system value="http://snomed.info/sct"/><code value="445141005"/><display value="Nebuliser therapy using mask"/></coding><text value="Nebuliser therapy using mask"/></code><status value="not-started"/><description value="Nebulizer can be used to make patient more comfortable"/></detail></activity><activity><detail><code><coding><system value="http://snomed.info/sct"/><code value="735324008"/><display value="Treatment escalation plan"/></coding><text value="Treatment escalation plan"/></code><status value="not-started"/><description value="Wants to avoid hospital admission if possible, but would want to consider options as need arises."/></detail></activity></CarePlan></resource></entry><entry><fullUrl value="https://data.developer.nhs.uk/ccri-fhir/STU3/Procedure/49"/><resource><Procedure xmlns="http://hl7.org/fhir"><id value="49"/><meta><lastUpdated value="2019-03-21T14:14:33.844+00:00"/><profile value="https://fhir.hl7.org.uk/STU3/StructureDefinition/CareConnect-Procedure-1"/></meta><identifier><system value="https://fhir.midyorks.nhs.uk/Procedure/Identifier"/><value value="adrt"/></identifier><status value="completed"/><code><coding><system value="http://snomed.info/sct"/><code value="376201000000102"/><display value="Issue of palliative care anticipatory medication box (procedure)"/></coding></code><subject><reference value="Patient/1184"/><display value="MS Emilie KEWN"/></subject></Procedure></resource></entry><entry><fullUrl value="https://data.developer.nhs.uk/ccri-fhir/STU3/Flag/3"/><resource><Flag xmlns="http://hl7.org/fhir"><id value="3"/><meta><lastUpdated value="2019-03-21T14:14:34.316+00:00"/><profile value="https://fhir.hl7.org.uk/STU3/StructureDefinition/CareConnect-Flag-1"/></meta><identifier><system value="https://fhir.midyorks.nhs.uk/Flag/Identifier"/><value value="adrt"/></identifier><status value="active"/><code><coding><system value="http://snomed.info/sct"/><code value="816301000000100"/><display value="Has ADRT (advance decision to refuse treatment) (Mental Capacity Act 2005)"/></coding></code><subject><reference value="Patient/1184"/><display value="MS Emilie KEWN"/></subject><author><reference value="Organization/200269"/><display value="Mid Yorkshire Hospitals Nhs Trust"/></author></Flag></resource></entry><entry><fullUrl value="https://data.developer.nhs.uk/ccri-fhir/STU3/Consent/1"/><resource><Consent xmlns="http://hl7.org/fhir"><id value="1"/><meta><lastUpdated value="2019-03-21T14:14:34.780+00:00"/></meta><identifier><system value="https://fhir.tpp.co.uk/Consent/Identifier"/><value value="consent1"/></identifier><status value="active"/><patient><reference value="Patient/1184"/><display value="MS Emilie KEWN"/></patient><dateTime value="2018-08-19T23:00:00+00:00"/><actor><role><coding><system value="http://hl7.org/fhir/v3/ParticipationType"/><code value="PROV"/><display value="Healthcare Provider"/></coding></role><reference><reference value="Practitioner/202214"/><display value="Dr K Rodger"/></reference></actor><policy><authority value="http://fhir.nhs.uk/Policy/EOLC"/></policy><purpose><system value="http://snomed.info/sct"/><code value="882981000000105"/><display value="Consent given by legitimate patient representative for sharing end of life care coordination record (finding)"/></purpose></Consent></resource></entry><entry><fullUrl value="https://data.developer.nhs.uk/ccri-fhir/STU3/Flag/1"/><resource><Flag xmlns="http://hl7.org/fhir"><id value="1"/><meta><lastUpdated value="2018-11-30T16:14:18.849+00:00"/><profile value="https://fhir.hl7.org.uk/STU3/StructureDefinition/CareConnect-Flag-1"/></meta><identifier><system value="https://fhir.midyorks.nhs.uk/Flag/Identifier"/><value value="unusmy8"/></identifier><status value="active"/><code><coding><system value="http://snomed.info/sct"/><code value="450476008"/><display value="Not for attempted cardiopulmonary resuscitation"/></coding></code><subject><reference value="Patient/1184"/><display value="MS Emilie KEWN"/></subject><period><start value="2018-07-31T23:00:00+00:00"/></period><author><reference value="Organization/200269"/><display value="Mid Yorkshire Hospitals Nhs Trust"/></author></Flag></resource></entry><entry><fullUrl value="https://data.developer.nhs.uk/ccri-fhir/STU3/Condition/102"/><resource><Condition xmlns="http://hl7.org/fhir"><id value="102"/><meta><lastUpdated value="2018-11-02T17:10:54.484+00:00"/><profile value="https://fhir.hl7.org.uk/STU3/StructureDefinition/CareConnect-Condition-1"/></meta><identifier><system value="https://fhir.midyorks.nhs.uk/Condition/Identifier"/><value value="akm2"/></identifier><clinicalStatus value="active"/><code><coding><system value="http://snomed.info/sct"/><code value="195967001"/><display value="Asthma"/></coding><text value="Asthma"/></code><subject><reference value="Patient/1184"/><display value="MS Emilie KEWN"/></subject><onsetDateTime value="2002-03-11T00:00:00+00:00"/><asserter><reference value="Practitioner/202214"/><display value="Dr K Rodger"/></asserter></Condition></resource></entry><entry><fullUrl value="https://data.developer.nhs.uk/ccri-fhir/STU3/Flag/2"/><resource><Flag xmlns="http://hl7.org/fhir"><id value="2"/><meta><lastUpdated value="2018-11-30T16:14:18.925+00:00"/><profile value="https://fhir.hl7.org.uk/STU3/StructureDefinition/CareConnect-Flag-1"/></meta><identifier><system value="https://fhir.midyorks.nhs.uk/Flag/Identifier"/><value value="unusmy8"/></identifier><identifier><system value="https://fhir.midyorks.nhs.uk/Flag/Identifier"/><value value="unusmy9"/></identifier><status value="active"/><code><coding><system value="http://snomed.info/sct"/><code value="526631000000108"/><display value="On end of life care register (finding)"/></coding></code><subject><reference value="Patient/1184"/><display value="MS Emilie KEWN"/></subject><period><start value="2018-07-31T23:00:00+00:00"/></period><author><reference value="Organization/200269"/><display value="Mid Yorkshire Hospitals Nhs Trust"/></author></Flag></resource></entry><entry><fullUrl value="https://data.developer.nhs.uk/ccri-fhir/STU3/Observation/10746"/><resource><Observation xmlns="http://hl7.org/fhir"><id value="10746"/><meta><lastUpdated value="2019-10-09T13:08:46.703+00:00"/><profile value="https://fhir.hl7.org.uk/STU3/StructureDefinition/CareConnect-Observation-1"/></meta><identifier><system value="urn:ietf:rfc:3986"/><value value="38e8e6ed-eb91-4af8-afa4-ff8fdb7be93c"/></identifier><status value="final"/><code><coding><system value="http://snomed.info/sct"/><code value="761869008"/><display value="Karnofsky Performance Status score (observable entity)"/></coding><text value="Performance Status score"/></code><subject><reference value="Patient/1184"/><display value="MS Emilie KEWN"/></subject><effectiveDateTime value="2018-07-31T23:00:00+00:00"/><performer><reference value="Practitioner/202214"/><display value="Dr K Rodger"/></performer><valueQuantity><value value="90.00"/><unit value="score"/><system value="http://unitsofmeasure.org"/><code value="score"/></valueQuantity></Observation></resource></entry><entry><fullUrl value="https://data.developer.nhs.uk/ccri-fhir/STU3/Flag/4"/><resource><Flag xmlns="http://hl7.org/fhir"><id value="4"/><meta><lastUpdated value="2019-03-21T14:14:36.067+00:00"/><profile value="https://fhir.hl7.org.uk/STU3/StructureDefinition/CareConnect-Flag-1"/></meta><identifier><system value="https://fhir.midyorks.nhs.uk/Flag/Identifier"/><value value="lpa"/></identifier><status value="active"/><code><coding><system value="http://snomed.info/sct"/><code value="816361000000101"/><display value="Has appointed person with personal welfare lasting power of attorney (Mental Capacity Act 2005)"/></coding></code><subject><reference value="Patient/1184"/><display value="MS Emilie KEWN"/></subject><author><reference value="Organization/200269"/><display value="Mid Yorkshire Hospitals Nhs Trust"/></author></Flag></resource></entry><entry><fullUrl value="https://data.developer.nhs.uk/ccri-fhir/STU3/RelatedPerson/78"/><resource><RelatedPerson xmlns="http://hl7.org/fhir"><id value="78"/><meta><lastUpdated value="2024-04-21T05:28:58.626+00:00"/></meta><identifier><system value="https://fhir.tpp.co.uk/NOK/Identifier"/><value value="person1"/></identifier><patient><reference value="Patient/1184"/></patient><relationship><coding><system value="http://hl7.org/fhir/v3/RoleCode"/><code value="HPOWATT"/><display value="healthcare power of attorney"/></coding></relationship><name><use value="official"/><family value="Kewn"/><given value="E"/><prefix value="Mr"/></name></RelatedPerson></resource></entry><entry><fullUrl value="https://data.developer.nhs.uk/ccri-fhir/STU3/ClinicalImpression/1"/><resource><ClinicalImpression xmlns="http://hl7.org/fhir"><id value="1"/><meta><lastUpdated value="2018-12-04T16:28:31.771+00:00"/></meta><identifier><system value="https://fhir.westriding.nhs.uk/ClinicalImpressionf/Identifier"/><value value="akm1"/></identifier><status value="completed"/><description value="Limited life expectancy of approximately one year"/><subject><reference value="Patient/1184"/><display value="MS Emilie KEWN"/></subject><date value="2018-08-19T23:00:00+00:00"/><assessor><reference value="Practitioner/202214"/></assessor><prognosisCodeableConcept><coding><system value="http://snomed.info/sct"/><code value="845701000000104"/><display value="Gold standards framework prognostic indicator stage A (blue) - year plus prognosis (finding)"/></coding><text value="Limited life expectancy of approximately one year"/></prognosisCodeableConcept></ClinicalImpression></resource></entry></Bundle>